Medical

CBD for Medical Conditions

This section explores research around the use of CBD for medical conditions. The information provided is not intended to diagnose, treat, cure, or prevent any disease or ailment. It should not be interpreted as an instruction or medical advice to displace the advice provided by your physician or other medical professionals. We recommend consulting with your doctor or other qualified health professionals for the preparation of a treatment plan for any diseases or ailments. Do not solely rely on the information provided by this page.

 

View the full list of categories

 

Brain

CBD has been shown to possess neuroprotective (protects nerve cells), analgesic (relieves pain), antitumor, and anti-anxiety effects. These characteristics make it an effective remedy for specific symptoms linked to brain disorders. Find out more about the studies that support CBD’s health benefits and explore how it can help with promoting or improving brain health.

 

Best CBD Oil for ADHD

Best CBD Oil for Anxiety

Best CBD Oil for Nausea

Can CBD Treat Vertigo?

 

Diet

CBD is becoming increasingly popular not just as a natural remedy for specific ailments but also as a supplement. Research has also shown that CBD oil impacts certain hormones in the body that influence appetite and digestion. Read on and explore how CBD can help one achieve a healthier lifestyle with CBD, and discover its many benefits to one’s general well-being.

 

CBD Oil For Weight Loss

CBD Oil for Fasting

CBD for Diabetes

CBD for Digestion

 

Pain

CBD and its effects on pain.

 

CBD for the Immune System

CBD and Asthma

CBD and Eczema

CBD for Thyroid

 

Pregnancy

While there is still a lack of evidence at this stage, enough studies have shown that the use of cbd while pregnant or breastfeeding can lead to an increased risk of low birth weight, preterm labor, and brain and behavior problems.

 

CBD and Fetal Alcohol Syndrome

CBD Oil and Pregnancy

CBD Oil and Breastfeeding

CBD Oil and Morning Sickness

 

Sleep

Sleeping problems are often a manifestation of other ailments, and research has shown CBD’s therapeutic benefits due to its sleep-inducing effects. A 2019 Gallup poll showed that 14% of Americans personally used CBD-based products with 11% of them citing usage for sleep. Read on and find out how CBD can help improve sleep, which could eventually result in better health conditions.

 

CBD Oil for Snoring

CBD for Sleep and Insomnia



Current Issue: October 2018

In This Issue

Least Restrictive Environment, Not One Size Fits All For Prader-Willi Syndrome


Type I Citrullinemia: A Review of A Rare Urea Cycle Disorder and Approach to Management


Trifid Mandibular Condyle: Report of A Rare Case


Startle Response Analysis of Food-image Processing in Prader-Willi Syndrome

Articles In This Issue »
>


An Open Access Journal

 

Interviews in Acromegaly

 

The Journal of Angioedema is happy to announce insightful interviews with 3 experts in the diagnosis, management and treatment of hereditary angioedema. Please visit www.JournalofAngioedema.com for these recent discussions.

 

---

 

Rare Disease Impact Report:

Insights from patients and the medical community

Table of Contents

Foreword ............................................................................................1

Acknowledgments..............................................................................2

Introduction ........................................................................................3

Methodology ......................................................................................4

Combined Summary of Key Findings ................................................6

Patient/Caregiver Findings .................................................................9

Physician Findings ...........................................................................17

Payor Findings..................................................................................21

Appendix .........................................................................................24

 

Foreword

 

At Shire, patients are at the heart of everything we do. We are dedicated to researching, developing, and marketing novel products that enhance the quality of life of patients suffering from rare diseases. However, despite the progress that has been made over the past few decades to help improve the quality of life and care for patients with rare diseases, there is still an urgent need to better understand the unique challenges of rare diseases so that appropriate measures can be taken to address any gaps in care. This is why Shire, in collaboration with an expert global panel of patient advocates, physicians, and policy experts in the rare disease field, conducted survey research in the United States (US) and United Kingdom (UK) to determine the health, psycho-social, and economic impact of rare diseases among patient and medical communities. Key findings published in this Rare Disease Impact Report identify and quantify the impact of rare diseases based on survey responses from a multi-stakeholder audience of patients/caregivers, physicians, payors, and thought leaders. We hope this report will serve as a sustainable tool that will drive a dialogue about the future of research, patient care, and access so as to improve the lives of people living with rare diseases and the families that care for them. Flemming Ørnskov, MD, Chief Executive Officer Designate, Shire

 

“This new report from Shire highlights and confirms the issues faced by patients affected by rare diseases. The inclusion and comparison of clinicians’, payors’ and patients’ experiences demonstrate the importance of working together, as a community, to tackle the issues faced by patients. It also highlights the importance of working with the international rare disease community in order to share best practices and information for all those affected.” Alastair Kent, Director, Genetic Alliance UK 

 

“This Impact Report brings to light the specific barriers to quality care that exist for patients with rare diseases, particularly the challenges in getting an accurate diagnosis, adequate information and ongoing care.” Nicole Boice, Founder and CEO, Global Genes | RARE Project

 

Acknowledgments

We would like to thank our external advisory board who contributed significantly to the development

of this Report: Nicole Boice, Founder and CEO, Global Genes | RARE Project; Dr. Priya S. Kishnani,

Division Chief, Medical Genetics, Duke University Medical Center; Tomas Philipson, Daniel Levin

Professor of Public Policy Studies, The University of Chicago; Alastair Kent, Director, Genetic Alliance

UK; Dr. Christian J. Hendriksz, Clinical Lead, Adult Inherited Metabolic Disorders, Salford Royal NHS

Foundation Trust; and Mike Drummond, Professor of Health Economics, University of York.

We would also like to thank Joel Middleton, Assistant Professor of Applied Statistics, New York

University, who contributed to the survey questionnaire design and survey analysis.

 

Introduction:

Uncovering the Impact of Rare Diseases Globally, some 7,000 rare diseases have been identified. Compared to widespread conditions that strike hundreds of millions of people, rare diseases can lack similar levels of interest amongst the general public and medical/ research communities. Most of these individual diseases receive little attention because they affect only thousands – or sometimes only hundreds – of patients worldwide. Yet looking at rare diseases as a collective entity, we are able to realize their expansive impact. Collectively, there are approximately 30 million people living with a rare disease in the US and another 3.5 million in the UK. Around the globe, the rare disease community is estimated to include 350 million people.5 And rare diseases touch more than just the patient. These conditions also impact families, friends, caregivers, physicians, payors, and society as a whole. There is an urgent need to understand the state of rare diseases and the current gaps in care and support. To address this need, in January 2013, Shire conducted online surveys over a four-week period among US/UK rare disease patients and their caregivers, physicians treating patients with rare diseases, payors who handle reimbursements for healthcare plans and government/institutions, and thought  leaders in the rare disease space. Surveys were fielded through market research agency ORC International and also distributed by advocacy group partners Global Genes and the Genetic Alliance UK. Based on survey responses from a multistakeholder audience sample, the overarching

concerns centered on several key themes:

 

Report Findings Call for the Following:

  1. Greater collaboration among physicians and access to specialists with expertise in rare diseases. Patient and physician responses point to the need for increased awareness, more educational programs, and additional networking opportunities or platforms connecting general practitioners and patients with appropriate specialists. This may help to expedite the lengthy process to a correct diagnosis.
  2. Additional resources for patients and caregivers to navigate the emotional impact of rare diseases, particularly for those where the treatment outlook is limited. There is a tremendous amount of emotional burden involved with finding credible information and qualified specialists as patients and their caregivers fight and pay for care for an uncommon ailment. Resources or care coordinators that help to navigate this process or ease the emotional burden are warranted.
  3. A need for more research to expand the current rare disease body of knowledge. Additional academic and clinical research will ultimately offer patients increased options, and provide physicians with more tools to diagnose patients, all while equipping payors with evidence-based guidelines upon which to base coverage decisions. 

 

“These survey findings suggest that whether in the US or UK, more research, information and education could help to alleviate some of the obstacles we see in getting patients the care they need.” Dr. Christian J. Hendriksz, Clinical Lead, Adult Inherited Metabolic Disorders, Salford Royal NHS Foundation Trust 

 

Methodology: The Data Collection

Patient/Caregiver Sample

While there are approximately 7,000 different types of rare diseases and disorders worldwide, the survey aimed to look at the commonalities in health, financial, and psycho-social experiences shared by those living with a rare disease and their loved ones.

Physician Sample

The survey looked at physician experiences treating and managing patients with rare diseases. United States Respondents included 50 US physicians with the following classifications:

Payor Sample

The survey looked into payor perspectives providing coverage and services for rare disease patients. United States Respondents included 20 payors with the following classifications:

provider (70%), private insurance providers

(30%)

 

---

 

Rare Disorders Journal

 

---

 

The Rate Card for The Journal of Rare Disorders is now Available!

For questions or to obtain the latest rate card, please contact mailto:nicolle@scicomgroup.com

 

Commercial Reprints and ePrints

Commercial article reprints and electronic ePrints are a powerful way to communicate with physicians and allied health professionals.  The Journal of Rare Disorders aims to publish the latest findings in this therapeutic area.  Commercial reprints and ePrints are professionally produced and can be customized with journal covers, company logos or disclaimer text.

 

To obtain a quote, please contact our Reprint Manager at:

 

Cindy@scicomgroup.com

 

---